Posted May 19, 2022
New Medical Cannabis Survey Recruiting Participants
The 2022 Medical Cannabis Access Survey is recruiting participants! Please visit MedicalCannabisSurvey.ca to take part in the 2022 The Medical Cannabis Access Survey and have your voice heard (French version here)! Make sure to share with others in your network.
This year’s survey is developed in partnership with Medical Cannabis Canada, University of Manitoba, McGill University, Sante Cannabis and SheCann Cannabis.
This new survey builds on the outstanding research our patient members have participated in previously aims to study how access to medical cannabis could be improved. Insights from this survey will be used to advocate for patient-centric policies within the Canadian cannabis space with the upcoming reviews of the Cannabis Act and medical framework fast approaching.
Who can participate:
- Canadians who have taken medical cannabis
- Canadians who have tried to take medical cannabis and faced barriers to access
- Caregivers (those who have facilitated or tried to facilitate medical cannabis access for someone they provide care for)
The study’s success depends on collaboration with patients, patient organizations and medical clinics across Canada who may be benefiting or struggling with the current medical cannabis program.
We are grateful to all patients who have previously shared their experiences in past surveys, without you we would not be here now. We encourage all MCC members to participate and have their voices heard.
If you have any trouble completing the survey or questions, please fill out the contact form linked at the bottom of the website.
Posted April 25, 2022
The University of Toronto and Baycrest Hospital are investigating the use of 40 Hz vibrations in treating Fibromyalgia symptoms and pain. You will need to be able to travel to Toronto at least 2 times.
If you are interested in this study contact firstname.lastname@example.org or phone 1 -416-785-2500 (3561)
Posted April 11, 2022
Living with Fibromyalgia – Rural and Northern Canadians
Dr. Catharine Schiller, Assistant Professor in the School of Nursing at The University of Northern British Columbia, is conducting a study to explore the experience of people who have been diagnosed with fibromyalgia and who currently reside in a rural or northern community in Canada.
Participants will be asked to take part in a 30 to 45 minute interview with the researcher using Zoom. The purpose of the interview is to gain an understanding of the experience of receiving a diagnosis of fibromyalgia, and living with this condition, while living in a rural or northern Canadian community.
- at least 18 years old
- living in a rural or northern community in Canada
- diagnosed with fibromyalgia
- access to a Zoom videocall connection for the interview
After completing their interview, each participant will receive a $15 e-gift card to their choice of either Tim Horton’s or Amazon.ca.
Posted April 4, 2022
Dr. Mathieu Roy’s Pain Lab at McGill University in Montreal, Quebec is currently recruiting participants for a new study investigating difficulties with cognitive function, like attention and memory, that accompany fibromyalgia.
Participation consists of one visit to McGill University (compensated) and would take approximately 2-3 hours to complete. Participation involves three main tasks: a series of questionnaires, neuropsychological tests, and a sensory assessment.
We are looking for individuals who:
- are ideally age 30 and over
- speak English or French
- have a diagnosis of fibromyalgia, for which they are on a consistent dose of medication
- are not suffering from any other chronic pain condition
- are not suffering from any cardiovascular, neurological, or psychiatric conditions
- are not pregnant
Interested participants can refer to the flyer for more details and contact email@example.com to discuss eligibility.
Posted January 16, 2022
CircaPain: a national population study of the circadian control of chronic pain
Pain is a protective mechanism that serves to warn us of potential danger. Chronic pain, however, serves no purpose, is exceptionally disabling, and affects almost 1 in 5 Canadians. Not everyone experiences chronic pain the same way: pain intensity can fluctuate throughout the day in some people but remain constant in others. Our 24-hour circadian rhythms regulate the function of our nervous and immune systems, and as a result, impact our experience of pain. Our group has shown that these rhythms play an important role in the pathophysiology of chronic low back pain through a cohort study, and now seeks to expand on these findings.
We have therefore developed a study to further explore the circadian control of chronic pain within the context of a large population sample. All Canadian adults experiencing chronic pain, regardless of condition, are eligible. With this study, we will:
- Examine the fluctuations in pain intensity, mood, and fatigue throughout the day;
- Determine differences between pain conditions in pain rhythmicity; and
- Investigate the potential association between geographic latitude and pain experience.
Our national study is composed of two main parts: (i) a baseline survey, including information on participant demographics, geographic location, sleep habits, and pain experiences, and (ii) a symptom diary, where participants rate the intensity of their pain, mood, and fatigue at three times per day (morning, afternoon, night), over seven days. We will then assess whether differing rhythmic patterns exist between various pain conditions. Finally, we will determine the prevalence of chronic pain conditions at different latitudes, and investigate the impact of day/night patterns on pain outcomes. This will help us understand whether circadian disruption, such as that experienced by those living further from the equator, plays a role in chronic pain. Future studies will include creation of a tissue biobank from participants in this study, to help us identify specific biomarkers of pain and pain rhythmicity.
Knowledge translation is integrated into every aspect of our project. We are developing a custom-made website, which will serve as host to the survey and its publications. It will also include a plain-language blog about chronic pain with contributions from scientific writers, a forum for participants to share their own experiences with pain rhythms, and an interactive platform that will allow survey participants to access basic data visualizations of the survey results, updated continuously as the study goes on. Our patient advisory committee, which includes patient-partners from across Canada, help guide our study and project design.
Through this work, we will come to better understand how pain fluctuates throughout the day in a variety of chronic pain disorders. This knowledge will bring us closer to determining why pain occurs and help to develop more effective strategies for its management.CircaPain-survey
The studies below are CLOSED and are no longer looking for participants
They are kept on the website for information purposes only
Posted May 19, 2022
The Chronic Pain and Romantic Relationships Study
Information Sheet for Young Person (aged 18-25 years) with Chronic Pain: Part 1 (Survey)
If you would like to take part in this study, contact Paula Forgeron: email firstname.lastname@example.org
Posted May 10, 2022
Dalhousie University Brain Networks & Neurophysiology Lab
Have you been diagnosed with Fibromyalgia or Myalgic encephalomyelitis or Chronic Fatigue Syndrome?
Take part in a study and get a picture of your brain! You will be reimbursed $50 per visit (total of $200) and will receive a 2D image of your brain. Participation includes completing questionnaires, computer tasks, and a heat pain task. Your brain will be studied with an MRI machine and we will collect fasting blood samples. If you take part, you will be scheduled to attend 4 visits at the Halifax Infirmary and or Dickson Building of the Victoria General Hospital.
To volunteer for this study, you must
- Have a diagnosis of Fibromyalgia syndrome (fibromyalgia or Myalgic encephalomyelitis /Chronic Fatigue Syndrome)
- Be 18-60 years of age
- Be right-handed
- Have no history of neurological conditions such as multiple sclerosis, Alzheimers
- Have normal vision or vision corrected with glasses or contact lenses.
Participants will be screened by telephone or email to meet additional criteria.
Please email email@example.com
or call Meenakshi Dev at 9024737449
Posted April 4, 2022
My name is Michelle Charette, and I am a PhD candidate in the Department of Science and Technology Studies at York University.
My research seeks to contribute to the development of health applications by speaking with individuals who use them to manage their pain, report symptoms, fill prescriptions, etc. What about these applications do users like? What works? What doesn’t?
At this current stage, I’m looking to speak with individuals who already use a symptom reporting/pain tracking app OR are willing to download one and use it consistently for 1-2 months.
I am looking to interview folks virtually (on the Zoom platform), with myself as the interviewer. The interviews will be between 45 – 90 minutes long, and completely anonymized. Those who are willing to download an app and give it a try will be interviewed twice (once for a baseline interview and another 1-2 months afterwards, to gauge how they are liking the application.
My research has been approved by the Human Participants Review Sub-Committee, York University’s Ethics Review Board. I am attaching the recruitment poster. Happy to answer any other questions you might have!
Study is in English only
Posted April 4, 2022
Double Duty Caregiver Research
Dr. Jasneet Parmar, Professor of Family Medicine at The University of Alberta is conducting a study to better understand the unique needs of diverse family caregivers, which may lead to better supports that address their needs and help advocate for better environments and policies that support them.
Dr. Parmar would like to understand how the COVID-19 pandemic and being a double-duty caregiving has impacted double-duty caregivers, family caregiving and work experiences. Double-duty caregivers are family caregivers who are employed in the healthcare field while also providing unpaid care outside of work (to a family member, chosen family, friend, or neighbor).
Click this link to complete the survey https://redcap.link/doubleduty
Posted March 12, 2022
Participants are needed for a study to assess the effectiveness of a mind-body app for the treatment of chronic pain.
Researchers from the Faculty of Health Sciences at the University of the Fraser Valley (British Columbia) are looking for those with chronic pain to participate in this study.
Who can participate?
They are looking for those who:
- have had chronic pain (bodily or head/migraine, includes fibromyalgia) for at least 6 months.
- have felt pain on at least half of the days in the last 6 months.
- have no significant cognitive impairments or psychiatric disorder and report no problematic substance use.
- have not previously used a mind-body application for their pain treatment/management (please reach out if you aren’t sure if an app you have used is considered a mind-body app) and are not enrolled in another pain study.
- are 19-75 years old
Please note: anxiety, depression, PTSD are not exclusions for our study as they are experienced by many patients chronic pain.
The next trial starts April 1st, 2022, so please reach out ASAP if you are interested to determine whether you meet eligibility requirements.
For more information, please contact firstname.lastname@example.org
Posted October 12, 2021
YES, YOU CAN Participate In International Fibromyalgia Research
Posted September 1, 2021
McGill University in Montreal, Quebec, is still looking for women with Fibromyalgia, living in Quebec, to participate in the following study, Dietary Treatments for Fibromyalgia. If you live in the area and are interested you can contact them at email@example.com or call them (514) 934-1934 x44348
Who Can Participate: Women 18 years or older who have fibromyalgia and who:
- are not pregnant;
- do not have any other significant medical conditions;
- did not take antibiotics, have changed their diet or were sick in the past month;
- do not follow a low-FODMAP or gluten-free diet
The study will take place at the Alan Edwards Pain Management Unit, at the Montreal General Hospital. In this study they will be exploring the efficacy of two dietary interventions for fibromyalgia as well as their effects on the gut microbiome.
The following website will give you more details: https://www.mcgill.ca/paincentre/research-0/diet-intervention-fibromyalgia
osted: August 10, 2021
Researchers from Queen’s University in Kingston, Ontario, need volunteers for a new fibromyalgia pain treatment study. You must have fibromyalgia and no other serious medical conditions. You would need to make 4 clinic visits to Kingston over 18-weeks. Study care and treatments are free of charge. For an opportunity to participate in a research study using pregabalin and alpha lipoic acid (ALA) in fibromyalgia patients, contact:
Sylvia Robb RN, CCRP
Research Coordinator-Pain trials
Tel: 613 549-6666 X3964