May 12th – International Fibromyalgia Awareness Day

Learn more and get involved this May 12 to support the fibromyalgia community.

May 12th has been designated International Fibromyalgia Awareness Day. This designation is intended to raise understanding about the condition and the challenges faced by those of us living with it. This day provides an opportunity for Fibromyalgia Association Canada (FAC) and the entire fibromyalgia community to educate the public, share patient experiences, advocate for research, hold campaigns and promote support for those of us affected by fibromyalgia.

What is fibromyalgia?

Fibromyalgia is a chronic, invisible condition that affects an estimated 2 million Canadians and millions more worldwide. It is characterized by widespread musculoskeletal pain, persistent fatigue, sleep disturbances, and cognitive difficulties, sometimes referred to as “fibro fog.” Despite its prevalence, fibromyalgia is frequently misunderstood, because people tend to not believe in things they can’t see.  Fibromyalgia is considered an “invisible illness”, because people living with it may appear healthy or fully functional, yet experience daily pain and fatigue that significantly impact their quality of life. This invisibility can lead to misunderstanding, stigma, and isolation, making awareness and education critical.

By learning about fibromyalgia, by listening to the voices of those affected, and by advocating for awareness, Fibromyalgia Association Canada (FAC) hopes to create a world where people living with fibromyalgia are recognized, supported, and never dismissed.

Across Canada and around the world, patients, caregivers, families, and communities mark May 12th with events, campaigns, and activities to highlight the realities of living with fibromyalgia. The goal is to foster empathy, understanding, and action, encouraging improvements in diagnosis, treatment, and support services.

By learning about fibromyalgia, listening to the voices of those affected, and advocating for awareness, we can help create a world where people living with fibromyalgia are recognized, supported, and never dismissed.

Did you know?

Fibromyalgia is one of the leading causes of disability related to chronic pain. The economic and social costs of fibromyalgia are significant, not only for individuals but also for families, workplaces, and the healthcare system.

Why May 12th?

May 12th was chosen to honour the birthday of Florence Nightingale, the founder of modern nursing, who is believed to have lived with a chronic illness similar to fibromyalgia or myalgic encephalomyelitis. Since 1992, this date has been dedicated internationally to raising awareness for fibromyalgia, and it is now a day of recognition across Canada and around the world. Nurses Day is also celebrated on this day because its Florence Nightingale’s birthday.

Other conditions that are being recognized on this day are International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Day, and Multiple Chemical Sensitivity (MCS) day.

The Role of FAC

Fibromyalgia Association Canada (FAC) is dedicated to supporting individuals, families, and caregivers affected by fibromyalgia. Through peer support, advocacy, education, and awareness campaigns, FAC works to create a stronger voice for the fibromyalgia community nationwide. May 12th provides a platform to highlight this work and to bring people together in solidarity. FAC marks May 12th with events, campaigns, and activities. Landmarks are lit up in purple, social media is flooded with awareness posts, and FAC hosts presentations, workshops, and support group sessions. Each effort helps to highlight the realities of living with fibromyalgia and the urgent need for greater understanding.

This May 12th, join FAC and the fibromyalgia community to shine a light on fibromyalgia. Together, we can change the narrative from invisibility and stigma to compassion, understanding, and hope.

Remember: May 12 is more than a date on the calendar, it’s a reminder of our resilience, our courage, and our unity. As well it’s a chance to honour the strength of people with fibromyalgia and inspire a future filled with compassion, research, and hope.

For more information on May 12th go to: https://fibrocanada.ca/en/may12th-purpose